The BMA’s annual representative meeting supported patients who opt out; it also called for a halt to development of the care records service and backed a motion expressing no confidence in the government’s ability to store patient records safely.
We’ve been getting two calls a minute following major coverage in the Telegraph on Sunday. Dr James le Fanu’s column was entitled “If we starve it of information, we could still kill off the Government’s ‘stealth’ database.” Unfortunately the puiece has not appeared online, so I will summarise it here.
He starts by recounting how essential trust is to GPs, and how easy it is to damage (even by rumour). He goes on to welcome the news that the scheme will be six years late, mentions that he does not recall getting any letter from the Department offering him an opt-out of “this profoundly misconceived scheme”, and points out that the latters are not addressed personally but to “the occupier”. He argues that the real agenda is to abolish the traditional GP surgery in favour of polyclinics, and calls on his readers to “scupper the scheme in its entirety” by registering their refusal to have their records uploaded.
See this story in the Guardian. Many doctors are opting out but when patients try to, the authorities try to dissuade them
The DH have got themselves into a bit of a mess. Healthcare Assistants at Bolton have access to patients’ full SPINE/Summary Care Record. See here. We knew it would happen and it has. Protect your medical confidentiality and opt out now.
Every time you attend any hospital appointment or are admitted, all your identifiable clinical details are sent to BT, without your consent. Yes – BT the people who send you your phone bill! These details include your full demographic details, diagnosis, treatment, GP details, hospital, consultant details, whether you will be seen again, how long you were in hospital etc etc. Even your most sensitive details such as gynaecological surgery, sexual problems, prostate problems and cancer treatment are sent to BT. These details are put on a database that BT runs called SUS. BT then sends these clinical details out to the DH, PCTs, Strategic Health Authorities and even Dr Foster.
When the NHS Care Records go live this will include everything you tell your GP too. Even your marital problems will be sent to BT.
This is nothing new. It has been going on for years but the DH does not want patients to know it. Prior to BT taking over the database it was run by a private company in Warwick.
The DH fully acknowledge that there is no secure basis in law for the use of this highly sensitive data without patient consent, yet they are continuing to refuse to allow patients to opt out of this database. In one set of DH minutes the DH state they do not want a patient to legally challenge them over this.
See Helen’s story which tells how I was labeled as an alcoholic. My MP had to get a debate in Parliament to get this completely incorrect data removed.
We will be starting a Campaign about this shortly so please keep watching the web site.
The BIg Opt Out